Stories & Outcomes

Discharge days are bittersweet at Blythedale Children's Hospital. While we miss the children we become so close to over the course of their treatment, our hearts soar when they are able to return to their families and their communities. We are proud to share some of their stories.

Adela Peskorz: Life Beyond Blythedale

60 years later, the #blythedaledifference lives on for this former patient

Adela Peskorz, now in her sixties, was born with a congenital dislocated hip and was admitted to Blythedale Children’s Hospital shortly after she was born. She spent seven years, from 1955 through 1962, as an inpatient. Adela's fondest memories include relaxing on the lawn at Blythedale and enjoying...

Tags:

  • Complex Post-Surgical Rehabilitation
  • Hip Dysplasia

Charlie's Comeback

Comprehensive rehabilitation at Blythedale Children’s Hospital gets Charlie back in the game.

On Valentine’s Day in 2020, 14-year-old Charlie was playing basketball with his friends when he suddenly felt tingling in his hands and fingers. He tried to call his parents, but his hands went numb, and he dropped his phone. “At that point I was completely paralyzed,” recalled Charlie. Charlie was...

Tags:

  • Neuromuscular Disorders
  • Transverse Myelitis

Stepping Stones Home

Max's Story

Meet Max, an aspiring content creator who - at age 12 - is taking on the world while recovering from congenital heart disease and an hypoxic brain injury. Max attends the Robert Stone Day Hospital at Blythedale Children’s Hospital which offers a specialized program for children who are able to live...

Tags:

  • Acquired and Traumatic Brain Injury
  • Cardiac Rehabilitation
  • Cardiac Arrest
  • Hypoxic Brain Injury
  • Stroke

Angela's Advice

A Complex Recovery Eased by Child Life, Therapeutic Recreation and Music

Eleven-year-old Angela was diagnosed with neurofibromatosis type 2, a condition that causes non-cancerous tumors to form in the brain, spinal cord, and nerves. She has undergone numerous complicated surgeries, followed by multiple rounds of chemotherapy to prevent the return of tumors that were...

Tags:

  • Neuromuscular Disorders
  • Complex Post-Surgical Rehabilitation
  • Neurofibromatosis

With Feeding Tube and Innovative Parent Education Program, AJ Thrives

For More than 60 Medically Fragile Infants and Children at Blythedale, Feeding Tubes Provide Essential, Life-Saving Nutrition

Eight-month-old AJ was born with both Down syndrome and Tetralogy of Fallot, a rare condition caused by a combination of four heart defects. Shortly after his birth, AJ required major surgery to improve blood flow to his heart. His complex condition necessitated both a tracheostomy (a surgically...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Specialized Feeding
  • Down Syndrome
  • Tetralogy of Fallot (ToF)

Joshua's Story: Creating Ability Through Assistive Technology

Through Assistive Technology, Joshua's limitations became limitless

Eighteen-year-old Joshua has Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), a rare neurological disorder that causes progressive weakness and impaired sensory function in the legs and arms. For Joshua, the disease has impacted his movement and coordination, and led to weakness in his...

Tags:

  • Assistive Technology
  • Complex Post-Surgical Rehabilitation
  • Chronic Inflammatory Demyelinating Polyneuropathy

Cody's Christmas

Cody made his way home just in time for the holidays and for his family's first Christmas as a family of five.

Cody and his sisters, Mackenzie and Abigail, were born prematurely at 27 weeks at Westchester Medical Center. Cody was in distress as a result of intrauterine growth restriction (IUGR) and was born with chronic lung disease typical of premature birth and required CPAP ventilation. He weighed a mere...

Tags:

  • Post Acute Neonatal Care
  • Specialized Feeding
  • Pulmonary Rehabilitation
  • Intrauterine Growth Restriction (IUGR)
  • Preemie
  • Extreme Prematurity
  • Bronchopulmonary Dysplasia (BPD)

Leo's Lasting Impression

Through the dedication of his parents, the staff at Blythedale, and the fight within Leo, he made it home, but not before leaving a lasting impression on all who met him.

Leo was admitted to Blythedale when he was 18-months old after being born with giant omphalocele, a rare birth defect in which the internal organs develop in a sack outside the abdominal wall. Leo required complex medical care for his complicated condition and intensive physical, occupational...

Tags:

  • Post Acute Neonatal Care
  • Specialized Feeding
  • Complex Chronic Conditions
  • Assistive Technology
  • Giant Omphalocele

The Blythedale Four

Proving Preemie Power Prevails

Despite their differences, four former preemies share a remarkable common bond at Blythedale Children's Hospital. Meet "The Blythedale Four" and learn about the threads that tie their lives together at New York's only post acute neonatal care rehabilitation center.

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Bronchopulmonary Dysplasia (BPD)
  • Chronic Lung Disease
  • Extreme Prematurity
  • Preemie

Knowledgeable Naphtaly

Health Home Helps Teach Patient Transitions, Responsibility

Naphtaly knows Blythedale. His lengthy and complex medical journey led him to Blythedale over the course of 12 years as an inpatient, a Robert Stone Day Hospital patient, an outpatient, and most recently, an enrollee in the Hospital’s Health Home Care Management Program. Nineteen-year-old Naphtaly...

Tags:

  • Neuromuscular Disorders
  • Complex Post-Surgical Rehabilitation
  • Neuromuscular Scoliosis
  • Centronuclear Myopathy