Six-year-old Jayden has no shortage of energy. Born at just 29-weeks gestation, the former preemie was diagnosed with intractable epilepsy, which caused seizures that were sometimes several minutes long. He used a manual wheelchair due to spasticity in his legs, and received all his nutrition...
Maryam was born full-term in January at Jacobi Medical Center in the Bronx. At birth, she was noted to have hypotonia, or decreased muscle tone, and a poor ability to feed. Less than a month later, Maryam was admitted to Blythedale Children's Hospital for complex medical care and specialized feeding...
Last September, five-year-old Steffon endured a life-threatening health crisis. Born with sickle cell disease, Steffon experiences periods of extreme pain, referred to as pain crises, at least once a year, a challenging but common symptom of the complicated disease. This time, however, was different...
During a middle school volleyball practice last September, Aubrey fractured her right femur. As her condition continued to deteriorate, Aubrey's parents, Meghann and Joe, brought her to Maria Fareri Children's Hospital for a CT scan which revealed several tumors on her spine. A subsequent biopsy...
A complex diagnosis improved through the efforts of an interdisciplinary team.
Blanca knows her son Jonathan is a strong fighter. Just three months into her pregnancy, Jonathan was diagnosed with aortic valve canal and trivial left and trivial right aortic valve regurgitation, pulmonary hypertension, intrauterine growth restriction, short limbs, hydronephrosis, and Trisomy 21...
Two days after the start of third grade, John was at home playing video games with his dad. He suddenly screamed, “I can’t see!” and then began vomiting and went unconscious. The eight-year-old was rushed to an emergency room in Staten Island where a CT scan showed bleeding in his brain from a...
Brandon is an 11-year-old who lets nothing slow him down - not even a heart transplant. He was born with multiple congenital heart defects, including heterotaxy, a rare condition which is characterized by septal defects and valve disorders, and an inability to productively return blood from the...
Thriving in Blythedale's Specialized Outpatient Feeding Program
Three-year-old Milana has attended Blythedale's Specialized Feeding outpatient program for more than a year now. As a medically complex child, finding all the therapies Milana required - in one location - was difficult for her mom, Deanna. Milana was born with Pierre Robin Sequence, a rare...
Bringing your child home is no small feat when they're medically fragile, but with Blythedale's Parent and Family Education Program it's possible.
Bringing your child home is no small feat when they're medically fragile. No family ever thinks they will be in the position of caring for a child with complex medical needs, but Blythedale’s innovative Parent and Family Education Program divides what initially seems like an overwhelming learning...
Gaining strength through therapies to overcome a rare genetic disorder.
Four-month-old Charlie was born with Ryanodine Receptor 1 Related (RYR-1) Myopathy, a rare genetic disorder that disrupts the flow of calcium in muscle cells, limiting the muscle's ability to contract. Diagnosed with low muscle tone at birth, Charlie was transferred from the NICU to Blythedale...
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At Blythedale we understand the value of balancing work and family. Our employees have the opportunity to grow both personally and professionally while making a meaningful contribution to improve the lives of children.
