Stories & Outcomes

Discharge days are bittersweet at Blythedale Children's Hospital. While we miss the children we become so close to over the course of their treatment, our hearts soar when they are able to return to their families and their communities. We are proud to share some of their stories.

Jonathan's Journey

A complex diagnosis improved through the efforts of an interdisciplinary team.

Blanca knows her son Jonathan is a strong fighter. Just three months into her pregnancy, Jonathan was diagnosed with aortic valve canal and trivial left and trivial right aortic valve regurgitation, pulmonary hypertension, intrauterine growth restriction, short limbs, hydronephrosis, and Trisomy 21...

Tags:

  • Pulmonary Hypertension
  • Pulmonary Rehabilitation
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Chronic Conditions
  • Post Acute Neonatal Care
  • Specialized Feeding
  • Trisomy 21
  • Bronchopulmonary Dysplasia (BPD)
  • Congenital Heart Disease
  • Feeding Disorders
  • Pulmonary Hypertension
  • Pulmonary Rehabilitation

Ocean and Rio Get a Taste of the Good Life

Premature twins thrive thanks to ventilator weaning and feeding therapy.

Ocean and Rio were born at just 23-weeks gestation and, as a result of their extreme prematurity, developed chronic lung disease. The twins had other complications, including a mass in Rio's airway that blocked his ability to speak or swallow, and Ocean had a perforated intestine that would require...

Tags:

  • Specialized Feeding
  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Bronchopulmonary Dysplasia (BPD)
  • Feeding Disorders
  • Transition to Oral Feeding from NG, GT, or G/J
  • Chronic Lung Disease

Joyful Jackson

Ex-Preemie Prevails with Respiratory Resilience, Brotherly Bond & Family of Fighters

Sixteen-month-old Jackson is full of joy and it shows. He loves to laugh, smile and play with his twin brother, Connor. As rare dichorionic/diamniotic identical twins, the pregnancy was complicated and the twins were born extremely premature at just 25-weeks gestation. “My wife was hospitalized for...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Pulmonary Hypertension
  • Specialized Feeding
  • Complex Chronic Conditions
  • Bronchopulmonary Dysplasia (BPD)
  • Extreme Prematurity
  • Chronic Lung Disease
  • Pulmonary Hypertension
  • Feeding Disorders
  • Hydrocephalus
  • Preemie