Stories & Outcomes

Discharge days are bittersweet at Blythedale Children's Hospital. While we miss the children we become so close to over the course of their treatment, our hearts soar when they are able to return to their families and their communities. We are proud to share some of their stories.

Baby Charlie's Journey

Gaining strength through therapies to overcome a rare genetic disorder.

Four-month-old Charlie was born with Ryanodine Receptor 1 Related (RYR-1) Myopathy, a rare genetic disorder that disrupts the flow of calcium in muscle cells, limiting the muscle's ability to contract. Diagnosed with low muscle tone at birth, Charlie was transferred from the NICU to Blythedale...

Tags:

  • Post Acute Neonatal Care
  • Complex Chronic Conditions
  • Specialized Feeding
  • Transition to Oral Feeding from NG, GT, or G/J

Ocean and Rio Get a Taste of the Good Life

Premature twins thrive thanks to ventilator weaning and feeding therapy.

Ocean and Rio were born at just 23-weeks gestation and, as a result of their extreme prematurity, developed chronic lung disease. The twins had other complications, including a mass in Rio's airway that blocked his ability to speak or swallow, and Ocean had a perforated intestine that would require...

Tags:

  • Specialized Feeding
  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Bronchopulmonary Dysplasia (BPD)
  • Feeding Disorders
  • Transition to Oral Feeding from NG, GT, or G/J
  • Chronic Lung Disease