Stories & Outcomes

Discharge days are bittersweet at Blythedale Children's Hospital. While we miss the children we become so close to over the course of their treatment, our hearts soar when they are able to return to their families and their communities. We are proud to share some of their stories.

Jayden's Joy

Six-year-old Jayden has no shortage of energy. Born at just 29-weeks gestation, the former preemie was diagnosed with intractable epilepsy, which caused seizures that were sometimes several minutes long. He used a manual wheelchair due to spasticity in his legs, and received all his nutrition...

Tags:

  • Complex Chronic Conditions
  • Severe Epilepsy

Laney's Fight

Laney McGowan was first diagnosed with Dravet Syndrome when she was four months old and had her first seizure. Laney received intensive physical, occupational, speech, and feeding therapies at Blythedale to help her regain her ability to use her left side

Six-year-old Laney McGowan was diagnosed with Dravet Syndrome when she was just four-months old and had her first seizure. Dravet Syndrome is a rare form of treatment-resistant epilepsy which causes prolonged seizures. In December, Laney struggled with several upper respiratory infections and...

Tags:

  • Complex Post-Surgical Rehabilitation
  • Complex Chronic Conditions
  • Acquired and Traumatic Brain Injury
  • Cardiac Rehabilitation
  • Dravet Syndrome
  • Acquired Brain Injury
  • Severe Epilepsy
  • Cardiac Arrest
  • Stroke

Merry Meredith

Assistive Technology and Rehabilitation Engineering Create Opportunities for Children with Disabilities

Meredith, a five-year-old with a rare form of epilepsy, doesn't let her diagnosis stand in the way of her happiness. "She's a very personable, smiling, energetic little girl that wants to interact with her world," said JeanMarie Florkowski, OTR, ATP, an occupational therapist and a member of the...

Tags:

  • Assistive Technology
  • Severe Epilepsy