Stories & Outcomes

Discharge days are bittersweet at Blythedale Children's Hospital. While we miss the children we become so close to over the course of their treatment, our hearts soar when they are able to return to their families and their communities. We are proud to share some of their stories.

Knowledgeable Naphtaly

Health Home Helps Teach Patient Transitions, Responsibility

Naphtaly knows Blythedale. His lengthy and complex medical journey led him to Blythedale over the course of 12 years as an inpatient, a Robert Stone Day Hospital patient, an outpatient, and most recently, an enrollee in the Hospital’s Health Home Care Management Program. Nineteen-year-old Naphtaly...

Tags:

  • Neuromuscular Disorders
  • Complex Post-Surgical Rehabilitation
  • Neuromuscular Scoliosis
  • Centronuclear Myopathy

Brave Bentley

Health Home Helps Medically Complex Boy & Family Thrive in Community

Bentley is more than meets the eye. He’s more than the power wheelchair that keeps him moving. He’s more than the ventilator that keeps him alive. He’s more than the assistive technology that helps him communicate. “He is the bravest kid in the world and an inspiration for anybody,” says Marlenny...

Tags:

  • Neuromuscular Disorders
  • Complex Chronic Conditions
  • Pulmonary Rehabilitation
  • Assistive Technology
  • Specialized Feeding
  • Complex Post-Surgical Rehabilitation
  • Nemaline Myopathy
  • Neuromuscular Scoliosis
  • Chronic Respiratory Failure

Independent Amanda

Teen Triumphs at Blythedale with Technology, Tenderness and Time

Graduation is a time to reflect on past achievements while looking ahead to new beginnings. For one special 12th grader at the Mt. Pleasant-Blythedale School, located on the grounds of Blythedale Children’s Hospital, her future is paved with potential. “I will be moving to a new house and have my...

Tags:

  • Assistive Technology
  • Complex Chronic Conditions
  • Otopalatodigital Spectrum Disorder
  • Cochlear Implant
  • Neuromuscular Scoliosis
  • Diabetes
  • Blindness
  • Deafness