Stories & Outcomes

Discharge days are bittersweet at Blythedale Children's Hospital. While we miss the children we become so close to over the course of their treatment, our hearts soar when they are able to return to their families and their communities. We are proud to share some of their stories.

Jayden Heads Home for the Holidays

Jayden was born at just 27-weeks' gestation. At birth, he required resuscitation and was placed on a mechanical ventilator to help him breathe. He was diagnosed with chronic lung disease of prematurity, also known as bronchopulmonary dysplasia, as well as pulmonary hypertension. He was first...

Tags:

  • Post Acute Neonatal Care
  • Complex Chronic Conditions
  • Bronchopulmonary Dysplasia (BPD)
  • Pulmonary Hypertension
  • Chronic Lung Disease

Healing Beyond Medicine: The Heart of Resilience

"When you hear your child has a sudden medical diagnosis or a sudden trauma, life as our families knew it has undergone a drastic change. One of our goals is to help them navigate that phase of their journey with support, with compassion, with clinical expertise, but mostly with hope." Watch the...

Tags:

  • Acquired and Traumatic Brain Injury
  • Post Acute Neonatal Care

Jayden's Joy

Six-year-old Jayden has no shortage of energy. Born at just 29-weeks gestation, the former preemie was diagnosed with intractable epilepsy, which caused seizures that were sometimes several minutes long. He used a manual wheelchair due to spasticity in his legs, and received all his nutrition...

Tags:

  • Complex Chronic Conditions
  • Severe Epilepsy

Maryam's Story: Success with Specialized Feeding

Maryam was born full-term in January at Jacobi Medical Center in the Bronx. At birth, she was noted to have hypotonia, or decreased muscle tone, and a poor ability to feed. Less than a month later, Maryam was admitted to Blythedale Children's Hospital for complex medical care and specialized feeding...

Tags:

  • Specialized Feeding

Steffon's Unbreakable Spirit

Last September, five-year-old Steffon endured a life-threatening health crisis. Born with sickle cell disease, Steffon experiences periods of extreme pain, referred to as pain crises, at least once a year, a challenging but common symptom of the complicated disease. This time, however, was different...

Tags:

  • Complex Wound and Burn Management
  • Complex Post-Surgical Rehabilitation
  • Complex Chronic Conditions
  • Sickle Cell Disease

Aubrey's Fight Against Ependymoma

During a middle school volleyball practice last September, Aubrey fractured her right femur. As her condition continued to deteriorate, Aubrey's parents, Meghann and Joe, brought her to Maria Fareri Children's Hospital for a CT scan which revealed several tumors on her spine. A subsequent biopsy...

Tags:

  • Cancer Rehabilitation
  • Brain Cancer
  • Spinal Cord Injury

Jonathan's Journey

A complex diagnosis improved through the efforts of an interdisciplinary team.

Blanca knows her son Jonathan is a strong fighter. Just three months into her pregnancy, Jonathan was diagnosed with aortic valve canal and trivial left and trivial right aortic valve regurgitation, pulmonary hypertension, intrauterine growth restriction, short limbs, hydronephrosis, and Trisomy 21...

Tags:

  • Pulmonary Hypertension
  • Pulmonary Rehabilitation
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Chronic Conditions
  • Post Acute Neonatal Care
  • Specialized Feeding
  • Trisomy 21
  • Bronchopulmonary Dysplasia (BPD)
  • Congenital Heart Disease
  • Feeding Disorders
  • Pulmonary Hypertension
  • Pulmonary Rehabilitation

John's Brave Journey Back from Brain Injury

Two days after the start of third grade, John was at home playing video games with his dad. He suddenly screamed, “I can’t see!” and then began vomiting and went unconscious. The eight-year-old was rushed to an emergency room in Staten Island where a CT scan showed bleeding in his brain from a...

Tags:

  • Acquired and Traumatic Brain Injury
  • Arteriovenous Malformation (AVM)
  • Stroke
  • Hemiparesis
  • Acquired Brain Injury

Brandon's New Heart

Brandon is an 11-year-old who lets nothing slow him down - not even a heart transplant. He was born with multiple congenital heart defects, including heterotaxy, a rare condition which is characterized by septal defects and valve disorders, and an inability to productively return blood from the...

Tags:

  • Cardiac Rehabilitation
  • Pre/Post Organ & Stem Cell Transplant
  • Congenital Heart Disease

Milana's Story

Thriving in Blythedale's Specialized Outpatient Feeding Program

Three-year-old Milana has attended Blythedale's Specialized Feeding outpatient program for more than a year now. As a medically complex child, finding all the therapies Milana required - in one location - was difficult for her mom, Deanna. Milana was born with Pierre Robin Sequence, a rare...

Tags:

  • Specialized Feeding
  • Pierre Robin Syndrome/Sequence