Stories & Outcomes

Discharge days are bittersweet at Blythedale Children's Hospital. While we miss the children we become so close to over the course of their treatment, our hearts soar when they are able to return to their families and their communities. We are proud to share some of their stories.

Knowledgeable Naphtaly

Health Home Helps Teach Patient Transitions, Responsibility

Naphtaly knows Blythedale. His lengthy and complex medical journey led him to Blythedale over the course of 12 years as an inpatient, a Robert Stone Day Hospital patient, an outpatient, and most recently, an enrollee in the Hospital’s Health Home Care Management Program. Nineteen-year-old Naphtaly...

Tags:

  • Neuromuscular Disorders
  • Complex Post-Surgical Rehabilitation
  • Neuromuscular Scoliosis
  • Centronuclear Myopathy

Ada's Adventure

Surviving Twin Preemie Weaned From Ventilator Dependency, Goes Home for First Time

As paramedics secured Ada in her car seat atop an ambulance stretcher, her mom, Laurena, stood inside their room at Blythedale Children’s Hospital and reviewed her checklist: 1) Ada’s oxygen levels 2) Ada’s tubing 3) Ada’s seatbelt 4) Ada’s “Discharge Day” outfit The bittersweet moment had finally...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Chronic Lung Disease
  • Bronchopulmonary Dysplasia (BPD)
  • Patent Ductus Arteriosus (PDA)

Kirk's Connection

Interpersonal & Interdisciplinary Relationships Help Infant Recover From Near Drowning Brain Injury

First-birthday memories are usually filled with family, friends, balloons and big pieces of cake. That was not the case for Kirk and his family. Instead, there were chest compressions, mouth-to-mouth resuscitation and a frantic drive to the emergency room. In August 2020, the joy-filled, healthy...

Tags:

  • Acquired and Traumatic Brain Injury
  • Neuromuscular Disorders
  • Specialized Feeding
  • Acquired Brain Injury
  • Storming
  • Disorders of Consciousness (DoC)

Blythedale Responds to COVID-19 Pandemic

"We all have fear, but courage is not the absence of fear. It's being able to do what you need to do despite fear." When the COVID-19 pandemic struck the region in March 2020, Blythedale put the safety and needs of its patients, families, staff and community first and became a place that all could...

Therapeutic Recreation: Healing Through Play

Sitting in a hospital bed or wheelchair, surrounded by beeping machines and new faces can be a bit jarring for both patient and parent. However, a special team at Blythedale Children’s Hospital has the unique responsibility of turning frowns upside down. They are the finders of fun. The laborers of...

Tags:

  • Acquired and Traumatic Brain Injury
  • Cardiac Rehabilitation
  • Cancer Rehabilitation
  • Neuromuscular Disorders
  • Complex Chronic Conditions
  • Complex Post-Surgical Rehabilitation
  • Complex Wound and Burn Management
  • Pulmonary Hypertension
  • Pulmonary Rehabilitation
  • Pre/Post Organ & Stem Cell Transplant

Joyful Jackson

Ex-Preemie Prevails with Respiratory Resilience, Brotherly Bond & Family of Fighters

Sixteen-month-old Jackson is full of joy and it shows. He loves to laugh, smile and play with his twin brother, Connor. As rare dichorionic/diamniotic identical twins, the pregnancy was complicated and the twins were born extremely premature at just 25-weeks gestation. “My wife was hospitalized for...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Pulmonary Hypertension
  • Specialized Feeding
  • Complex Chronic Conditions
  • Bronchopulmonary Dysplasia (BPD)
  • Extreme Prematurity
  • Chronic Lung Disease
  • Pulmonary Hypertension
  • Feeding Disorders
  • Hydrocephalus
  • Preemie

Making Music Matter

Therapy Program Promotes Hope, Self-Expression & Socialization

“Every human being has an inherent musical ability. We all have a heartbeat and a heartbeat is a rhythm.” It’s this sense of hope at Blythedale Children’s Hospital that has kept the beat going strong for the music therapy program. But, what exactly is music therapy? It’s much more than playing an...

Tags:

  • Acquired and Traumatic Brain Injury
  • Cancer Rehabilitation
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Wound and Burn Management
  • Neuromuscular Disorders
  • Post Acute Neonatal Care
  • Pre/Post Organ & Stem Cell Transplant
  • Pulmonary Hypertension
  • Acquired Brain Injury
  • Cerebral Palsy (CP)
  • Traumatic Brain Injury (TBI)

Navigating Nathaniel's Needs

Assistive Technology Empowers Exploration & Education

Nathaniel is like any other eight-year-old. He loves to watch cartoons, joke around and play on his iPad. The only difference is that Nathaniel not only uses this high-tech device for fun, but also to communicate and explore his world. When Nathaniel was born, his doting parents brought him home to...

Tags:

  • Assistive Technology
  • Neuromuscular Disorders
  • Complex Chronic Conditions
  • Cerebral Palsy (CP)
  • Spastic Quadriplegia
  • Hypotonia
  • Seizure Disorders
  • Extreme Spasticity

In the Blink of an Eye

Battling Back from Brain Injury

"In the Blink of an Eye" is the inspiring story of two children at Blythedale Children's Hospital and their complex road to recovery following devastating brain injuries. Watch Xiomara and Easton as they navigate an unexpected future with the help of their medical team, family and friends. See the...

Tags:

  • Acquired and Traumatic Brain Injury
  • Complex Post-Surgical Rehabilitation
  • Assistive Technology
  • Traumatic Brain Injury (TBI)
  • Arteriovenous Malformation (AVM)
  • Stroke