Stories & Outcomes

Discharge days are bittersweet at Blythedale Children's Hospital. While we miss the children we become so close to over the course of their treatment, our hearts soar when they are able to return to their families and their communities. We are proud to share some of their stories.

Steffon's Unbreakable Spirit

Last September, five-year-old Steffon endured a life-threatening health crisis. Born with sickle cell disease, Steffon experiences periods of extreme pain, referred to as pain crises, at least once a year, a challenging but common symptom of the complicated disease. This time, however, was different...

Tags:

  • Complex Wound and Burn Management
  • Complex Post-Surgical Rehabilitation
  • Complex Chronic Conditions
  • Sickle Cell Disease

Aubrey's Fight Against Ependymoma

During a middle school volleyball practice last September, Aubrey fractured her right femur. As her condition continued to deteriorate, Aubrey's parents, Meghann and Joe, brought her to Maria Fareri Children's Hospital for a CT scan which revealed several tumors on her spine. A subsequent biopsy...

Tags:

  • Cancer Rehabilitation
  • Brain Cancer
  • Spinal Cord Injury

Jonathan's Journey

A complex diagnosis improved through the efforts of an interdisciplinary team.

Blanca knows her son Jonathan is a strong fighter. Just three months into her pregnancy, Jonathan was diagnosed with aortic valve canal and trivial left and trivial right aortic valve regurgitation, pulmonary hypertension, intrauterine growth restriction, short limbs, hydronephrosis, and Trisomy 21...

Tags:

  • Pulmonary Hypertension
  • Pulmonary Rehabilitation
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Chronic Conditions
  • Post Acute Neonatal Care
  • Specialized Feeding
  • Trisomy 21
  • Bronchopulmonary Dysplasia (BPD)
  • Congenital Heart Disease
  • Feeding Disorders
  • Pulmonary Hypertension
  • Pulmonary Rehabilitation

John's Brave Journey Back from Brain Injury

Two days after the start of third grade, John was at home playing video games with his dad. He suddenly screamed, “I can’t see!” and then began vomiting and went unconscious. The eight-year-old was rushed to an emergency room in Staten Island where a CT scan showed bleeding in his brain from a...

Tags:

  • Acquired and Traumatic Brain Injury
  • Arteriovenous Malformation (AVM)
  • Stroke
  • Hemiparesis
  • Acquired Brain Injury

Brandon's New Heart

Brandon is an 11-year-old who lets nothing slow him down - not even a heart transplant. He was born with multiple congenital heart defects, including heterotaxy, a rare condition which is characterized by septal defects and valve disorders, and an inability to productively return blood from the...

Tags:

  • Cardiac Rehabilitation
  • Pre/Post Organ & Stem Cell Transplant
  • Congenital Heart Disease

Milana's Story

Thriving in Blythedale's Specialized Outpatient Feeding Program

Three-year-old Milana has attended Blythedale's Specialized Feeding outpatient program for more than a year now. As a medically complex child, finding all the therapies Milana required - in one location - was difficult for her mom, Deanna. Milana was born with Pierre Robin Sequence, a rare...

Tags:

  • Specialized Feeding
  • Pierre Robin Syndrome/Sequence

Going Home

Bringing your child home is no small feat when they're medically fragile, but with Blythedale's Parent and Family Education Program it's possible.

Bringing your child home is no small feat when they're medically fragile. No family ever thinks they will be in the position of caring for a child with complex medical needs, but Blythedale’s innovative Parent and Family Education Program divides what initially seems like an overwhelming learning...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Hypertension
  • Pulmonary Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Bronchopulmonary Dysplasia (BPD)
  • Extreme Prematurity
  • Micro Preemie
  • Preemie
  • Retinopathy of Prematurity (RoP)
  • Chronic Lung Disease

Baby Charlie's Journey

Gaining strength through therapies to overcome a rare genetic disorder.

Four-month-old Charlie was born with Ryanodine Receptor 1 Related (RYR-1) Myopathy, a rare genetic disorder that disrupts the flow of calcium in muscle cells, limiting the muscle's ability to contract. Diagnosed with low muscle tone at birth, Charlie was transferred from the NICU to Blythedale...

Tags:

  • Post Acute Neonatal Care
  • Complex Chronic Conditions
  • Specialized Feeding
  • Transition to Oral Feeding from NG, GT, or G/J

Noheli's New Moves

Through comprehensive rehabilitation following an acquired brain injury, Noheli got her movement back.

Noheli is a six-year-old who never stops moving. In July, her father, Nelson, brought her to the emergency room when it appeared that she was unable to move the left side of her body. She was transferred to Cohen's Children's Medical Center where she was diagnosed with and treated for Acute...

Tags:

  • Acquired and Traumatic Brain Injury
  • Neuromuscular Disorders
  • Acute Disseminating Encephalomyelitis
  • Hemiparesis
  • Hemiplegia

MPB Graduation 2023

Blythedale Children’s Hospital is no stranger to celebrating milestones. On Friday, June 23, four graduates received their diplomas from Mount Pleasant Blythedale Union Free School District.

Blythedale Children’s Hospital is no stranger to celebrating milestones. On Friday, June 23, four graduates received their diplomas from Mount Pleasant Blythedale Union Free School District. The Special Act school district which was created in 1971 to serve the patients of Blythedale Children's...

Tags:

  • Complex Post-Surgical Rehabilitation
  • Complex Chronic Conditions
  • Neuromuscular Disorders
  • Hip Dysplasia
  • Leg Lengthening