Stories & Outcomes

Discharge days are bittersweet at Blythedale Children's Hospital. While we miss the children we become so close to over the course of their treatment, our hearts soar when they are able to return to their families and their communities. We are proud to share some of their stories.

Jonathan's Journey

A complex diagnosis improved through the efforts of an interdisciplinary team.

Blanca knows her son Jonathan is a strong fighter. Just three months into her pregnancy, Jonathan was diagnosed with aortic valve canal and trivial left and trivial right aortic valve regurgitation, pulmonary hypertension, intrauterine growth restriction, short limbs, hydronephrosis, and Trisomy 21...

Tags:

  • Pulmonary Hypertension
  • Pulmonary Rehabilitation
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Chronic Conditions
  • Post Acute Neonatal Care
  • Specialized Feeding
  • Trisomy 21
  • Bronchopulmonary Dysplasia (BPD)
  • Congenital Heart Disease
  • Feeding Disorders
  • Pulmonary Hypertension
  • Pulmonary Rehabilitation

Joyful Jackson

Ex-Preemie Prevails with Respiratory Resilience, Brotherly Bond & Family of Fighters

Sixteen-month-old Jackson is full of joy and it shows. He loves to laugh, smile and play with his twin brother, Connor. As rare dichorionic/diamniotic identical twins, the pregnancy was complicated and the twins were born extremely premature at just 25-weeks gestation. “My wife was hospitalized for...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Pulmonary Hypertension
  • Specialized Feeding
  • Complex Chronic Conditions
  • Bronchopulmonary Dysplasia (BPD)
  • Extreme Prematurity
  • Chronic Lung Disease
  • Pulmonary Hypertension
  • Feeding Disorders
  • Hydrocephalus
  • Preemie

Marvelous Mirela

Blythedale Patient Overcomes the Odds to Thrive in Pediatric Long Term Care

In June of 2016, then three-month-old Mirela was admitted to Blythedale’s Infant & Toddler Unit for medical management of her complex condition, and potentially for ventilator weaning. She was diagnosed with pulmonary hypertension and chronic respiratory failure, as well as congenital hypotonia, a...

Tags:

  • Pulmonary Hypertension
  • Chronic Respiratory Failure
  • Pulmonary Hypertension
  • Hypotonia