Stories & Outcomes

Discharge days are bittersweet at Blythedale Children's Hospital. While we miss the children we become so close to over the course of their treatment, our hearts soar when they are able to return to their families and their communities. We are proud to share some of their stories.

Daniella's New Dawn

Teen with Acquired Brain Injury Defies Diagnosis

Can a nosebleed save a life? For Daniella and her family, it did. Born full term and leading a healthy, active life for her first eleven years, the young girl rarely needed a doctor. In fifth grade, Daniella began developing frequent nose bleeds, fatigue and dizziness that gradually worsened until...

Tags:

  • Acquired and Traumatic Brain Injury
  • Complex Post-Surgical Rehabilitation
  • Specialized Feeding
  • Acquired Brain Injury
  • Brain Hemorrhage

Hope for Hiroshy

Former Preemie with Jejunal Atresia Grows Into Promising Pupil

From the start of his life, Hiroshy and hospitals have gone hand in hand. Born premature at 33-weeks’ gestation in October 2011, Hiroshy was diagnosed with jejunal atresia (an incomplete formation of part of the small intestine), and spent 90 days in the NICU. The newborn underwent numerous...

Tags:

  • Complex Chronic Conditions
  • Specialized Feeding
  • Pre/Post Organ & Stem Cell Transplant
  • Post Acute Neonatal Care
  • Assistive Technology
  • Extreme Prematurity
  • Short Gut Syndrome
  • Total Parenteral Nutrition (TPN)

Malka on the Mend

LVAD Dependent, Pre-Transplant Patient Returns After Cardiac Surgery

“I’ve never had a child, who’s had a major organ transplant, come back so quickly.” Dr. Mary Didie, Unit Chief of the Day Hospital Program at Blythedale Children’s Hospital, proudly uttered those words upon the return of nine-year-old Malka in March 2018, less than three-weeks after receiving a...

Tags:

  • Cardiac Rehabilitation
  • Pre/Post Organ & Stem Cell Transplant
  • Left Ventricular Assist Device (LVAD)
  • Heart Transplant
  • Stroke

A Journey of Hope

"No family ever expects to be in this situation. You just don't think it can happen to you." Did you know 45% of our patients are under the age of one? Follow the extraordinary journeys of a few of Blythedale's smallest and most fragile infants, as their families prepare to bring them home... for...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Hypertension
  • Specialized Feeding
  • Cardiac Rehabilitation
  • Extreme Prematurity
  • Micro Preemie
  • Congenital Heart Disease
  • Acquired Brain Injury

Wondrous Wadeem

International Heart Transplant Patient's Journey Spans Continents for Cardiac & Pulmonary Care

How far would you go for the best medical care for your child? For five-year-old Wadeem and her family, the answer was half a world away. Diagnosed with complex congenital heart disease at birth, Wadeem underwent multiple cardiac reparative surgeries in her home country of Saudi Arabia and, later...

Tags:

  • Pre/Post Organ & Stem Cell Transplant
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Chronic Conditions
  • Congenital Heart Disease
  • Chronic Lung Disease

Amazing Abby Overcomes Cardiac and Pulmonary Challenges

Nearly One, Infant Heads Home for the First Time

Abby has always amazed her parents and medical teams. The full-term baby was born in April 2017 with a prenatal diagnosis of an atrioventricular canal (AVC) defect and critical coarctation, both congenital heart defects. And within the span of only nine days, Abby underwent two reparative heart...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Cardiac Rehabilitation
  • Congenital Heart Disease

Raelynn's Road to Recovery

Bubble CPAP Offers Non-Invasive Ventilation Treatment for Preemie

Four-month-old Raelynn – born at just 24-weeks gestation - is heading home for the first time. It’s been a complicated journey for first-time mom, Raveen, but one that was made easier thanks to the support she and Raelynn received at Blythedale Children’s Hospital. During her 117-day NICU stay...

Tags:

  • Post Acute Neonatal Care
  • Bronchopulmonary Dysplasia (BPD)
  • Patent Ductus Arteriosus (PDA)
  • Extreme Prematurity
  • Preemie

Bringing Demi Home

My Blythedale Experience

Our daughter Demi was diagnosed with Juvenile Pilocytic Astrocytoma, a rare brain tumor found in children. Once diagnosed in the ER, Demi had to undergo an emergency surgery to have a ventricular drain placed into her skull in order to drain the excess cerebrospinal fluid that accumulated due to the...

Tags:

  • Acquired and Traumatic Brain Injury
  • Complex Post-Surgical Rehabilitation
  • Astrocytoma
  • Juvenile Pilocytic Astrocytoma (JPA)

Cara's Story

My Blythedale Experience

My name is Cara Macdonald, and I am a former patient at Blythedale. I believe it was Dr. Rackley, my neuropsychologist, who asked me, as part of a series of simple questions to test my awareness, who the president of the United States was. I still think back today about how shocked I was, even in...

Tags:

  • Acquired and Traumatic Brain Injury
  • Complex Post-Surgical Rehabilitation
  • Traumatic Brain Injury (TBI)

Malka on the Move

When eight-year-old Malka arrived at Blythedale last October, she was a trailblazer in her own right. Malka was born with dilated cardiomyopathy, a condition in which the heart's ability to pump blood is decreased because the heart's left ventricle is enlarged and weakened. Despite her previously...

Tags:

  • Cardiac Rehabilitation
  • Pre/Post Organ & Stem Cell Transplant
  • Left Ventricular Assist Device (LVAD)