Stories & Outcomes

Discharge days are bittersweet at Blythedale Children's Hospital. While we miss the children we become so close to over the course of their treatment, our hearts soar when they are able to return to their families and their communities. We are proud to share some of their stories.

Merry Meredith

Assistive Technology and Rehabilitation Engineering Create Opportunities for Children with Disabilities

Meredith, a five-year-old with a rare form of epilepsy, doesn't let her diagnosis stand in the way of her happiness. "She's a very personable, smiling, energetic little girl that wants to interact with her world," said JeanMarie Florkowski, OTR, ATP, an occupational therapist and a member of the...

Tags:

  • Assistive Technology
  • Severe Epilepsy

River's Road Home

Respiratory Therapy and Parent Training Pave the Path from Hospital to Home.

Ana Rivera found out she was pregnant on Halloween in 2020. She and her partner, Diana Vasquez, started preparing for the next chapter in their lives and their new arrival. However, on April 8, 2021, at just 26 weeks’ gestation, River Omari Rivera was born weighing a mere 2 lbs., 2 oz. and was just...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Bronchopulmonary Dysplasia (BPD)
  • Chronic Lung Disease
  • Micro Preemie

Maria's Village

Care at The Steven and Alexandra Cohen Pediatric Long Term Care Pavilion Leads to a Happy Homecoming

Maria is a six-year-old girl whose family has long awaited her arrival home and it's taken a village to get her there. Maria was born with arthrogryposis, a rare and complex congenital condition that affects the joints in her upper and lower limbs causing stiffness and limiting her range of motion...

Tags:

  • Complex Chronic Conditions
  • Pulmonary Rehabilitation
  • Congenital Anomalies

The Magic of Health Home

When asked about who Noah is, his mom, Katy, replied, “Noah is an amazing little boy. Well, I shouldn’t say little boy anymore because he’s 15, but to me he’s always going to be my little boy.” Noah was born prematurely at just 24-weeks’ gestation and was hospitalized for three months. Shortly after...

Tags:

  • Complex Post-Surgical Rehabilitation

Recovery and Resilience

"You never wake up and imagine that you, or your child, would have to endure this kind of madness."

Hear the stories of three children who were impacted by gun violence and treated at Blythedale Children's Hospital.

Tags:

  • Acquired and Traumatic Brain Injury
  • Complex Post-Surgical Rehabilitation
  • Traumatic Brain Injury (TBI)
  • Hemiplegia
  • Paralysis

Adela Peskorz: Life Beyond Blythedale

60 years later, the #blythedaledifference lives on for this former patient

Adela Peskorz, now in her sixties, was born with a congenital dislocated hip and was admitted to Blythedale Children’s Hospital shortly after she was born. She spent seven years, from 1955 through 1962, as an inpatient. Adela's fondest memories include relaxing on the lawn at Blythedale and enjoying...

Tags:

  • Complex Post-Surgical Rehabilitation
  • Hip Dysplasia

Charlie's Comeback

Comprehensive rehabilitation at Blythedale Children’s Hospital gets Charlie back in the game.

On Valentine’s Day in 2020, 14-year-old Charlie was playing basketball with his friends when he suddenly felt tingling in his hands and fingers. He tried to call his parents, but his hands went numb, and he dropped his phone. “At that point I was completely paralyzed,” recalled Charlie. Charlie was...

Tags:

  • Neuromuscular Disorders
  • Transverse Myelitis

Stepping Stones Home

Max's Story

Meet Max, an aspiring content creator who - at age 12 - is taking on the world while recovering from congenital heart disease and an hypoxic brain injury. Max attends the Robert Stone Day Hospital at Blythedale Children’s Hospital which offers a specialized program for children who are able to live...

Tags:

  • Acquired and Traumatic Brain Injury
  • Cardiac Rehabilitation
  • Cardiac Arrest
  • Hypoxic Brain Injury
  • Stroke

Angela's Advice

A Complex Recovery Eased by Child Life, Therapeutic Recreation and Music

Eleven-year-old Angela was diagnosed with neurofibromatosis type 2, a condition that causes non-cancerous tumors to form in the brain, spinal cord, and nerves. She has undergone numerous complicated surgeries, followed by multiple rounds of chemotherapy to prevent the return of tumors that were...

Tags:

  • Neuromuscular Disorders
  • Complex Post-Surgical Rehabilitation
  • Neurofibromatosis

With Feeding Tube and Innovative Parent Education Program, AJ Thrives

For More than 60 Medically Fragile Infants and Children at Blythedale, Feeding Tubes Provide Essential, Life-Saving Nutrition

Eight-month-old AJ was born with both Down syndrome and Tetralogy of Fallot, a rare condition caused by a combination of four heart defects. Shortly after his birth, AJ required major surgery to improve blood flow to his heart. His complex condition necessitated both a tracheostomy (a surgically...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Specialized Feeding
  • Down Syndrome
  • Tetralogy of Fallot (ToF)